Resources

External Links

The following websites may be of interest. Please note that any views expressed on these sites are those of the site originators and are not necessarily endorsed by EPG, its publisher IMR International Ltd, or our Niemann Pick Disease partner, Actelion Pharmaceuticals Ltd.

Scientific and medical societies

European Organisation for Rare Diseases (EURORDIS)
www.eurordis.org
 
European Neurological Society (ENS)
www.ensinfo.com

European Study Group on Lysosomal Diseases (ESGLD)
www.esgld.org

Lysosomal Disease Network
www.lysosomaldiseasenetwork.org

Orphanet
www.orpha.net

National Organization for Rare Disorders (NORD)
www.rarediseases.org

Society for the Study of Inborn Errors of Metabolism (SSIEM)
www.ssiem.org

Patient organisations

Denmark

Sjældne Diagnoser / Rare Disorders Denmark
www.raredisorders.dk

France

Vaincre Les Maladies Lysosomales
www.vml-asso.org

Germany

Niemann-Pick Self-help Group
www.niemann-pick.de

Italy

Niemann-Pick Association
www.niemannpick.org

UK

Niemann-Pick Disease Group
www.niemannpick.org.uk

USA

Ara Parseghian Medical Research Foundation
www.parseghian.org

National Niemann-Pick Disease Foundation
www.nnpdf.org

National Tay-Sachs and Allied Diseases Association
www.ntsad.org

Canada

The Canadian Chapter of the National Niemann- Pick Disease Foundation
www.nnpdf.ca

© 2007 Blackwell Publishing Limited. Reproduced by permission.

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